Volume 7 Supplement 1

8th International Conference on Conservative Management of Spinal Deformities and SOSORT 2011 Annual Meeting

Open Access

Information provided to patients with adolescent idiopathic scoliosis (AIS) at the first point of diagnosis in the hospital clinic: a survey of UK NHS scoliosis consultants

  • J Bettany-Saltikov1,
  • D Martin1,
  • S Wellburn1 and
  • P Van Schaik1
Scoliosis20127(Suppl 1):O36

DOI: 10.1186/1748-7161-7-S1-O36

Published: 27 January 2012

Purpose

The purpose of this survey was to determine what information is currently provided by NHS scoliosis centres in the UK at the point of first diagnosis of patients with AIS [1].

Background

Service users` health information needs are very frequently not addressed in hospital clinics. The role of the patient as an active partner in health care is now widely accepted and providing information to patients is considered fundamental [2].

Material and methods

An electronic survey was emailed to senior consultants at 30 key scoliosis centres in the UK. The survey covered questions relating to the most common questions asked by service users when first diagnosed, whether any written information was provided and who had written this and whether patients were referred to any relevant web sites.

Results

The response rate was 47%. The most common questions asked by service users related to aetiology (22.5%) prognosis (42.6%) general treatment (16.8%) surgery (12.4%) and parental guilt (5.6%). 78.6% of consultants said that patients were provided with written information provided by a member of staff and written by the Scoliosis Association UK in 61.5% of cases. 92% of consultants referred patients to relevant web sites. Surgeons stressed the importance for information to be evidence-based, address patients anxieties and counselling needs, provide clear natural history information and address ways of contacting other patients with AIS who have or have not undergone surgery.

Conclusions

AIS patients at the point of first diagnosis at hospital are provided with relevant information or referred to relevant web-sites in a significant number of scoliosis UK centres. Further studies are in progress to evaluate patients’ perceptions on the quality and format of information currently provided by NHS scoliosis centres.

Declarations

Acknowledgements

This work was supported by the British Scoliosis Research Foundation Registered Charity NO 803772.

Authors’ Affiliations

(1)
Institute of Health and Social Care

References

  1. Department of Health: High quality care for all: NHS Next stage review. 2008, (Accessed July 2010)Google Scholar
  2. Arthur V: Written patient information: a review of the literature. Journal of Advanced Nursing. 1995, 21: 1081-1086. 10.1046/j.1365-2648.1995.21061081.x.View ArticlePubMedGoogle Scholar

Copyright

© Bettany-Saltikov et al; licensee BioMed Central Ltd. 2012

This article is published under license to BioMed Central Ltd. This is an open access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

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