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Table 1 Characteristics of Adolescents with AIS and Parents of a Child with AIS in OSGs

From: An exploration of information exchange by adolescents and parents participating in adolescent idiopathic scoliosis online support groups

 

Adolescents (n = 305)

Parents (n = 300)

p

Gender

  

.770

 Female

205 (89 %)

208 (92 %)

 

 Male

25 (11 %)

18 (8 %)

 

Current/past treatments

 Just diagnosed

28 (9 %)

90 (20 %)

< .001

 Observation

23 (8 %)

27 (9 %)

.515

 Brace treatment

196 (64 %)

158 (53 %)

.004

 Scheduled for surgery

14 (5 %)

17 (6 %)

.549

 Have had surgery

31 (10 %)

21 (7 %)

.165

Type of information exchange

  

.180

 Providing information

160 (52 %)

141 (47 %)

 

 Seeking information

145 (48 %)

159 (53 %)

 

AIS-specific information

 Causes, progression and/or diagnosis

96 (31 %)

145 (48 %)

< .001

 Co-occurring conditions and/or pain

45 (15 %)

42 (14 %)

.792

 Physical functioning

25 (8 %)

20 (20 %)

.474

 Appearance

38 (12 %)

16 (5 %)

.002

Brace-specific information

 Daily/nightly brace wear

40 (13 %)

35 (12 %)

.589

 Monthly/yearly brace wear

35 (11 %)

24 (8 %)

.150

 Types of brace

62 (20 %)

75 (25 %)

.170

 Non-adherence to brace wear

20 (7 %)

13 (4 %)

.230

 Effectiveness of brace treatment

52 (17 %)

63 (21 %)

.216

 Physical appearance in front of others

58 (19 %)

26 (9 %)

< .001

 Comfortableness of wearing the brace

57 (19 %)

47 (16 %)

.325

 Daily physical functioning in brace

31 (8 %)

27 (9 %)

.725

 Participation in sports/exercise

7 (2 %)

17 (6 %)

.034

 What to wear/clothes and/or how to dress

33 (11 %)

27 (9 %)

.455

Other biomedical information

 Doctors/hospitals

14 (5 %)

63 (21 %)

< .001

 Research/resources

11 (4 %)

16 (5 %)

.305

  1. Note. p-value is two-sided, significance at 0.05