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Table 1 Characteristics of Adolescents with AIS and Parents of a Child with AIS in OSGs

From: An exploration of information exchange by adolescents and parents participating in adolescent idiopathic scoliosis online support groups

  Adolescents (n = 305) Parents (n = 300) p
Gender    .770
 Female 205 (89 %) 208 (92 %)  
 Male 25 (11 %) 18 (8 %)  
Current/past treatments
 Just diagnosed 28 (9 %) 90 (20 %) < .001
 Observation 23 (8 %) 27 (9 %) .515
 Brace treatment 196 (64 %) 158 (53 %) .004
 Scheduled for surgery 14 (5 %) 17 (6 %) .549
 Have had surgery 31 (10 %) 21 (7 %) .165
Type of information exchange    .180
 Providing information 160 (52 %) 141 (47 %)  
 Seeking information 145 (48 %) 159 (53 %)  
AIS-specific information
 Causes, progression and/or diagnosis 96 (31 %) 145 (48 %) < .001
 Co-occurring conditions and/or pain 45 (15 %) 42 (14 %) .792
 Physical functioning 25 (8 %) 20 (20 %) .474
 Appearance 38 (12 %) 16 (5 %) .002
Brace-specific information
 Daily/nightly brace wear 40 (13 %) 35 (12 %) .589
 Monthly/yearly brace wear 35 (11 %) 24 (8 %) .150
 Types of brace 62 (20 %) 75 (25 %) .170
 Non-adherence to brace wear 20 (7 %) 13 (4 %) .230
 Effectiveness of brace treatment 52 (17 %) 63 (21 %) .216
 Physical appearance in front of others 58 (19 %) 26 (9 %) < .001
 Comfortableness of wearing the brace 57 (19 %) 47 (16 %) .325
 Daily physical functioning in brace 31 (8 %) 27 (9 %) .725
 Participation in sports/exercise 7 (2 %) 17 (6 %) .034
 What to wear/clothes and/or how to dress 33 (11 %) 27 (9 %) .455
Other biomedical information
 Doctors/hospitals 14 (5 %) 63 (21 %) < .001
 Research/resources 11 (4 %) 16 (5 %) .305
  1. Note. p-value is two-sided, significance at 0.05